September 7, 2026 Update

If you are new here, please go back and read How It Started.

Since my first post I have gone through 2 weeks of chemotherapy/immunotherapy infusion treatments. Thankfully I have experienced minimal side effects from those treatments and actually feel pretty well most of the time.

Before those treatments began, pain management was a challenge. I found that if I got behind on taking the prescribed pain meds at the time, it meant that playing catch-up was hard. Combine that with 3 days of me doing too much, it was spending a lot of time being down for the count.

Last week, before the second infusion day, Ben and I were able to meet with a Palliative Care doctor to come up with a longer term plan that better meets my needs to be active, and minimizes the number of pills to manage. Our health system is crazy, as you may already know. I am currently transitioning to a pain protocol that will allow be to be more active and independent (small local errands and appointments via driving myself vs. relying on others).

We have had many requests to bring us meals and for visiting during treatments at Fred Hutch or elsewhere. I have attempted to set up a system here on my site that might work. Please feel free to try/test it for me and we’ll see how it goes.

I will continue to share more about this journey here on my website. Please feel free to leave a comment (they are moderated). And if you want to get email updates, you can also subscribe to get them sent to your email inbox.

Wore my BeWell multi-access fleece and stayed comfy and warm for Infusion Day 2.
#Cholangiocarcinoma #CholangiocarcinomaWarrior #FredHutch #FuckCancer #CancerSucks